Posted in activism, bugaboos, disability, faith, life, nanowrimo, Personal, society, writing

11/4: Writing and Respect

I hit 2500 words last night and then had another task today, which took up a chunk of my afternoon. So I’ll write this evening and then tomorrow.

On my way home on the bus, I noticed things. The more I’m on public transit, the more I see both good and bad behaviors. One dude wearing a camo jacket and had camo on his backpack (and a trucker hat… with a trucking company name on it) sat across from me and was entirely too guilty of “manspreading.” And I really wish he hadn’t. There was a hole in the crotch of his filthy jeans… not big enough to know what color his undies were, but noticeable. Which is bad enough.

Then two examples of people wanting to get on the bus not waiting for people to get off the bus. The first time was when I arrived at my destination and these two kids just got on and even after I said ‘Excuse me,” loud enough, still stood there like they had zero clue. It wasn’t until the adult in the group (mom or aunt, I presume) who was still outside on the sidewalk spoke up and told them to get off the bus and let me get off. Because of being disabled and having my wheeled crate with me, the front door is best.

Then, on the way home, two ‘kids’ in their early 20’s or so didn’t bother waiting for an elderly woman to get off the bus. The only difference was that no one, not even the driver, told them to wait. Most drivers will hold up their hand and tell boarding riders to wait because someone was exiting. This driver was younger and female and had a new setup with a plexi-glass barrier up (that can unlatch and swing open for her to get up) for her protection. Maybe she’s fairly new, or she is concerned about getting any riders upset, but she said nothing. These two just pushed past the older woman.

This brings me to a bugaboo I have: lack of respect. I’ve seen, and dealt with a lot more of this on public transit recently. I use a cane and I still am expected to ask for a seat in the priority seating area for elderly and disabled riders. None of us should have to ask. The signs are actually pretty damn obvious. A couple days ago, a fellow disabled rider had to tell a woman who purposely turned away to ignore that someone else with a cane (me) needed the seat she was in. The older woman said I needed the seat. She reluctantly moved. We chatted and she said she recently watched as someone requested that an able-bodied person move so the disabled person could sit in the area designated for us, and the guy sitting there refused to move. Another guy, who was disabled, told the reluctant guy that he was required to move for people like us. He still refused. I can’t remember what she said ultimately happened, but man…

We. Should. NOT. Have. To. Ask.

It’s called respect. Try it sometime.

Sadly, I’ve seen a decline in it in recent months, even in the last few years. I do my best to respect others. But it’s a two-way street, ladies and gents and everyone else. If you want my respect, you gotta earn it. You are NOT entitled to it. Shit, you aren’t entitled to anything other than being able to breathe… and equal rights. I don’t give a shit who you are, where you’re from, what you do for a living, etc. If you treat others like shit, expect that in return. You are owed nothing. Want respect? Be worthy of respect.

I believe that every person who makes it to adulthood has earned a basic amount of respect… say 5 points. You can lose some of those points by being an absolute asshole to people… or you do massively evil things. But I believe we all start adulthood with those 5 points. You want more? Earn them. Do good deeds, be kind to those who maybe aren’t as lucky as you are. Respect those around you, even simply by being polite and kind to them. Let them off the damn bus before you board. It isn’t difficult to do. It just takes a few extra seconds and a little patience.

Practice kindness and respect. You’ll earn them tenfold in return.

~A

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Posted in cats, creativity, dreams, family, grad school, life, nanowrimo, Personal, Science Fiction and Fantasy, writing

11/3: NaNoWriMo: WTF am I doing??

Yeah… three shorter tales. Below is what I put on my NNWM profile for this years’ work. Intel Reports may get a title change… potentially DisPATCHES from Earth… but we’ll see. Mausi is the historical piece. I’m expanding upon a short-short I wrote for the Writer’s Games in 2016. I loved the characters… still do. Something about the bond between grandmother and granddaughter. Maybe for me it’s to do with the fact that I never knew my maternal blood grandmother (she died when my mom was young) and barely knew my paternal grandmother (but we had a bond nonetheless… she passed away when I was 6). I find the bond spanning generations to be fascinating and wonderful. What I do remember of my dad’s mom was a woman who loved me and wasn’t afraid to say so. I still miss her 40 years later.

So an “orphaned” young teen trapped on a transport ship with no human contact; feline reports about trying to make contact with humans; and a tale spanning decades and generations. Yup… I have my hands full. Plus school and everything else.

******

In Between (YA SF): Trapped on a transport ship, Leyna is now a young teen, having grown from infancy unwanted back on Earth due to reasons she doesn’t understand, and is unsure of why the destination colony hasn’t accepted their ship. While the older passengers have been in stasis, she was saved from death and sent to the colony. During her time in a specialized stasis chamber that allowed her to grow and thus learn by subconscious transmission, she has come to understand that she is “different” and the colony is little more than a fancy prison.

As she reaches the age of 13, she is able to leave the chamber and learn more about the ship and her fellow passengers. What she learns and what she realizes about herself forces her to make decisions that could cost her her life, and those of her fellow passengers.

*************************************

Intel Reports (Comic SF. in progress name): We all know it. Cats are smart. Little do humans know, but they’re really an alien race that has sent several intel operatives to figure out if humans are ready to handle becoming part of the Universal Consortium.

One problem: They can’t seem to communicate with the Felines. A few manage to get close, but their sentences are gibberish. This Tail of Time is made of reports from operatives throughout time. From the Egyptians to modern humans in the 21st Century. Reports from the Front Lines of First Contact.

***************************************

Mausi (Historical Fiction): Mausi is the nickname for 10 year old Anelie Scheer, but only her grandmother, Annika “Oma” Siegel is allowed to call her that. It’s the eve of the fall of the Berlin Wall, a wall that separated Oma from her beloved husband, Erich, after the end of WWII. The rumors of the wall coming down bring Annika to reminisce about her marriage and the hope of Erich still being alive. She wonders if he remembers her.

**************************************

~A

Posted in Personal

11/2: NaNoWriMo, Life, and …

Once again, I’m doing NaNoWriMo. Along with being a Tasker (my lone income at the moment), school, job hunting, appts, etc, etc. This is my 13th year in a row. I’m also semi-rebelling this year.

Three short stories all under the 50K word umbrella. One YA SF, one comic Science Fantasy, and one semi-historical fiction. A challenge, to be sure.

I’m just coming off of a two day run of furniture assembly. It isn’t easy work for me, but I enjoy it. I’m good at it, despite my random occasional mistakes. I cleared my availability for tomorrow so I can rest (and get some writing and school stuff done). Then I have another task Saturday. Same thing: furniture.

I’m tired and in a moderate amount of pain, so I’ll sign off of here, get a few more words in on my stories (I always start slow) and then get some sleep.

I’ll do more blogging on here this month, I swear!!

~A

Posted in anxiety, C-PTSD, chronic pain, creativity, depression, disability, dreams, empath life, eviction, faith, friends, grad school, grief, health, homeless, housing, insomnia, job hunting, life, medical, Personal, writing

10/21: Living Outside My Own Life

More “frustration contemplation” … bear with me.

I’ve chattered on about the various things I do: writing fiction, etc, costuming, grad school, and a bunch of other things. I’ve also talked -at length- about depression, grief, homelessness, being unemployed, being disabled, etc…

Right now, I feel like I’m not living my life. I’m trying to move forward, busted my ass and made promises to get back to school and finish this term, but I’m flailing again… each week flies by me and I look up to find myself even further behind and royally fucked. My own doing. Job hunting is the same. I feel removed from the life I’m supposed to be living.

My health hasn’t helped this, but neither has being homeless and jobless, and … yeah. I know I need to do X, Y, and Z… but I don’t … I… fuck it. This is difficult to put into words on a ‘page.’

I see ME doing all these things in my head. I KNOW I can do them, but I feel like… like there’s a door between the me I am at this moment and the me who can do all those things. That door is locked and deadbolted and can’t be gotten through. And I don’t know where the keys are. I know they exist, but not what they look like or where they may be. I feel as if I’m standing at the window next to the door, looking in. Seeing this other me accomplishing things. But she can’t hear me banging on the window and door to let me in.

Every time I try to jump back in, break down that door, the brain fog returns. The disconnectedness. The feeling like my life is RIGHT FUCKING THERE!!! and it’s just out of reach. I can hear it, smell it, see it… but I can’t step into it and DO it.

Is my being “in between” [i.e. homeless] part of it? Likely. Is being jobless for over two years part of it? Very likely. Nothing like spinning your wheels in a job hunt and getting nowhere. The rare interview I do get, I don’t get hired. Despite the fact that my VR coach has said I interview very well.

I feel as if I can’t fully be ME where I am. Not my kitchen, not my bed, not my bathroom, not my home.

A lot of it started when I lost my dad in 2014. Before I was evicted. My dad was my anchor in life. If I felt lost, I could call him and he’d say what was needed to get me back to center. It’s been nearly 3 years now. A couple of weeks away. I slowly began to slip after he died. I was able to keep shit together to some degree for a while, but over a year later, my own disintegration became more obvious. The fog settled in. It lifts every so often for a brief moment or two, then returns to envelope me, keeping me from my life.

It’s looking -to me at least, from my own digging around- that Chronic Fatigue/Adrenal Fatigue is a distinct possibility. Long term stress makes it worse. Look at my life of the past 12 months… it’s been pretty fucking stressful. But getting out of this mess. How?

CFS/AFS has no cure. Doctors treat the symptoms at best. I’m on Vitamin D (enough to choke a large farm animal), and Celexa, among other meds for things like my asthma and allergies, my tachycardia, and “as needed” pain meds.

Is my current living situation part of the issue? The late start to mornings here… the people I’m staying with are retirees, so they stay up late and get up late. I stay up to about 11 and try to get up at a reasonable hour in the morning (Furry Alarm Clock gives me no choice), but I’m groggy and stumble around. Fall back asleep and wake up a few hours later… late morning. There are other “environmental factors” as well, but I won’t go into those. And no, setting an alarm doesn’t help. Tried that. Keep trying it every so often.

But that brain fog… lack of oomph… standing outside of my life… I don’t know how to fix that.

~A

Posted in anxiety, C-PTSD, cats, chronic pain, community, depression, disability, eviction, faith, friends, gender, health, history, individuality, job hunting, life, medical, Personal, PTSD, sexual assault, society

10/16: Wake Up Tomorrow #metoo

TW/CW: Talk of suicide, sexual assault, C-PTSD, etc…

I’ve talked about all of these things in spades over the lifespan of this blog. With the #metoo tag flying around on FB and Twitter the last two days, I felt like expanding on mine.

Now, I have (at some point) ticked off all the times I was sexually assaulted.

  • At 17, by a 22 y.o. acquaintance.
  • At 19, by a blind date. Tried to force me to perform oral on him, pushing my head down. I broke free and threatened to call the police.
  • At 19, by a guy I met at a Twelfth Night event… friends invited him to our Rocky Horror outing later that evening. While he had been in costume, he was mostly a gentleman (save for trying to un-lace my bodice in public)
  • At 21/22. After 6 weeks in an increasingly abusive relationship, I started to pull away from him, which he noticed. He spent the next 2 and a half months raping and assaulting me (using various areas of my body to ‘get his rocks off’) all against my will. I cried, I begged, I said no every damn time, but even making me bleed repeatedly didn’t matter to him. This happened 2-3 times a week… on a good week.

Those are the major, or most distinctive, events. Getting catcalled, being told by some older guy in Chicago (as we passed each other in the crosswalk) that “damn, you got some bigguns!” … no matter what I’m wearing, what my body language is saying (usually “don’t fucking get near me, asshole”), what I’m doing, I’ve had hands brush against my butt, breasts, etc… hands that should stay up near my shoulders wandering down… at a club one night (partly why I fucking HATE clubs) getting dragged out onto the dance floor and made to dance with some stranger, who kept putting his hand on my thigh and slipping it up to my hip under my skirt (which wasn’t that fucking long to begin with). I was 18, I think. It was an “Under 21” club.

Do I need to go on? I think I’ve made my point.

This shit happens every damn day to women of all skin colors, sexualities, cis or trans… you name it. Fuck, I got catcalled just a month or so ago… wearing all baggy grungy clothes heading to the MAX stop (I think I was going to an appt or something). Me with my mohawk and baggy clothes and beat up sneakers and a cane… getting catcalled.


I’ve also, as I think I’ve said in previous posts, had many phases or short contemplations of suicide. High school, a period in my 30’s when my asshole doctor decided to put me on Prozac, which made me want to slit my fucking wrists so badly, it outdid the suicidal ideations of my high school years. That shit fucked me up so badly.

In the past couple of years, I’ve had shorter bursts of contemplating it. Usually when I’ve been in full panic mode over possible eviction as well as earlier this year with the eviction itself. I lost count how many times I sat on my bed or my couch … or in the bathtub … thinking of why the fuck I should keep living? Then I got either of the girls, Portia or JoJo when she was still alive, just coming up to me and purring and either nudging me or tapping my arm or leg with a paw.


Life isn’t easy. I’m dealing with C-PTSD, my asshole ex cyberstalking me like I’m his damn “internet chew toy” … being homeless in a tentative situation that needs to come to an end, but my means to get back into my own place again are virtually non-existent. Trying to finish grad school, find decent work, organize my stuff in storage, handle medical and dental appts, go on tasks to make some income, and remember to take my meds and eat decently. Some of those, especially the later things I listed, are basic, normal-ish things I can handle… working all the big stuff around them is the hardest part. With chronic fatigue and pain, getting up at a decent hour that isn’t close to noon, but earlier in the day, is not always easy to do.


So, you may wonder what the subject heading of this post means… here’s my lesson and philosophy behind it:

Look back up at all the shit I’ve been through. Add verbal and emotional abuse by some family, used and abused by people I thought were friends, etc… I’ve dealt with a lot.

Wake Up Tomorrow

I adopted this years ago during a bad run… I think it was later in high school. Say you had one of THE shittiest days you can remember in recent months. Everything went wrong and in some seemingly catastrophic way, or at least that’s how it feels. You may already be battling a period of depression or severe pain. You contemplate ending things. You’re absolutely SURE tomorrow is going to also suck and you can’t imagine things getting better any time soon.

So you think about it.

But you can’t guarantee tomorrow will suck. Shit, you don’t know what will happen tomorrow, or the day after, or the day after that. Maybe it’ll suck, maybe it’ll be awesome, but you won’t know unless you wake up tomorrow. And the days following it. You can’t know for sure that it’ll be horrendously awful. Unless you wake up tomorrow. Go to sleep, get some rest, cry if you need to (man, I’m surprised the tear stains aren’t permanent on my face by now), and wake up tomorrow. Sounds simple, I know. Take each and every day as it comes.

Will that work for everyone dealing with shit? No. I know it works for me. I’ve had friends and a few strangers, in the past 24 hours or so, call me brave. I’ve done therapy off and on since I was 16. I understand so much about my past, but I don’t really know how I’m getting through it… except for one thing:

I wake up every day.

I’ve had close calls, due to medical stuff, not attempts on my part, and they’ve taught me this: Not everyone gets the chance to wake up the next day. No one knows when they’re going to die. The fact that, despite pain and all kinds of other things, I wake up every day and am able to feed my floofy monster kitty, that my heart is still pumping blood, my lungs are still taking in oxygen, my legs work… mostly. I have those days when my legs/back/feet/hips/knees/etc just rebel and go, “nope!! what was that about going somewhere today? yeah… not happening, bitch.”

Life isn’t easy. But I figure that as long as I keep waking up every day, I have a fighting chance to make things better. Never know unless you wake up.

~A

Posted in bugaboos, chronic pain, disability, health, life, medical, Personal

10/12: “Back” History

Me doing a few dishes is another reminder of how fucked my back is and yet how little can be done medically… ten minutes rinsing dishes and such… just… ow.
For those who may not know my “back” story:
I first injured it slipping and falling on ice when I was 17, halfway through my senior year of high school (this, for those who know me from high school, is why I started using a cane after Spirit Week).
It took a year and going through about 8 docs to find one who didn’t look at my age and dismiss me. Dr. Nolan. Best damn Ortho in the region (SF/Bay Area) He found the two slipped discs in my low back. These put pressure on my sciatic nerve.
Fast forward 5 years and, despite the nerve pain, the discs were no longer slipped out of alignment. I had still been dancing during those years, whenever I wasn’t in pain. The sciatica flared up time to time, but with being active, it wasn’t as severe.
Then about 4-5 years ago, I slipped on some painted wood stairs and first hit my tailbone, then turned to brace my hands and feet against the walls, but still bounced down on my right hip, the same one from when I was 17.
I went to the doctor as the bruising was QUITE colorful and… sizable. I had a massive horseshoe shaped bruise on my right ass cheek. Yes, there are pictures… no, you may not see them.
They did a single x-ray of my tailbone, found no issues and told me to ice it and be more careful. In the radiologist report of that x-ray, I found they mentioned the same two vertebrae from years ago were a bit out of place. Familiar situation…
I asked, and have still every so often, for an x-ray of my hip and right side of my pelvis, to no avail. This pain in that hip is still VERY prevalent, especially when I’m using my cane (which is every time I go out. when I’m at ‘home’ I know there are things I can lean on or sit on if needed, but when I’m out and about, I can’t be sure, so the cane comes with me) and carrying nearly anything more than 2 pounds in my left hand (because of the most recent SI joint pain, the cane is usually in my right hand, but I will switch when needed as both sides are pretty fucked up).
Hence part of my post from last night about my tools and tool box. That fucker is heavy. Likely closer to 10-12 pounds when loaded up. My new mallet doesn’t help that, as it’s not a lightweight itself.
I’ve put up with it for almost 28 years (February will be the actual ‘anniversary’ of the first injury). There isn’t much that they can do surgically… in fact there really isn’t anything they can do surgically. I can’t afford a gym membership to help strengthen the muscles. I don’t have the space to try any dancing here. One thing I wish they would do is to just x-ray my damn hip and see if there is real damage. If I didn’t have medicaid, I’d just start doc-hopping like I did that first year.
Also, if I were closer, I’d go back to Dr. Nolan and I know damn well he’d help me solve the mystery. He’s closing in on retirement and mentoring someone else to take over his practice. He’s one of THE best Orthos in the SF/Bay Area. Just wish it hadn’t taken a year to find him. I’ve asked to get a referral to Ortho here, but they apparently only will take cases that have a viable chance of surgery… personally, I think that’s a huge mistake. There’s so much more that can be done.

I’ve injured other things over the years: both knees, left ankle, both feet in some way, had two or three minor concussions… it sucks ass… trust me.

But my back? That’s the one that’s never going away. Never will truly heal. And it makes every day life difficult at times.
Like doing dishes.
~A
Posted in anxiety, bugaboos, C-PTSD, chronic pain, depression, disability, domestic abuse, empath life, health, job hunting, life, Personal, PTSD, sexual assault, society

10/12: Social Anxiety and C-PTSD

I’m gonna try putting this into actual words rather than just swirling around in my head. Hopefully, it’ll make sense.


Despite medications and such, I feel disconnected. Maybe it’s partly because of being jobless and homeless, but I don’t feel like I’m part of anything. Despite (slowly) working on finishing school and trying to find work and having lots of friends… I just don’t feel it.

My social anxiety is ramping up even worse, probably because the C-PTSD is so not helping matters. I want to have my own place and just stay there. Not go anywhere unless I really have to.

The C-PTSD is from recurring sexual assault during a relationship over 20 years ago. I thought I’d moved past that part of it with therapy and could handle things again, but since a massive trigger nearly a year ago, I now know otherwise.

[This section came from an f-locked post on FB… with edits.]
**This person don’t know what happened. What he triggered. I know, in some way, I should explain it to him, but I can’t. Mind you, he did nothing inherently wrong
. I do NOT blame him. I have believed I had my shit regarding the sexual assaults from 24 years ago handled. Bast knows I’ve had tons of therapy dealing with it. But one touch -as friends- that wasn’t even super-intimate set me down a path I’m still fighting with today. It was something that reminded me of what my ex used to do. There was no ill intention on this friend’s part. 
And I’m not getting any better. Right now, as I’m typing this, I’m crying, trying not to go into a full panic attack.

When you see what I’ve been through since last November, it makes sense that I feel my life is spiraling out of control, no matter how much I may seem -on any given day- to be doing better. It isn’t just the C-PTSD… it’s anxiety, it’s stress, it’s not knowing when shit will get better.**

More and more, I’m hesitant about going out, being on public transit. While many are hesitant about it for reasons such as the potential of being attacked, my reasons are different.

  • strong perfume/cologne/body spray causes headaches
  • loud noises/talking makes me cringe
  • and lastly: I can’t handle sitting next to someone and us ending up touching (usually hips or such)… especially if they’re male.

I’ve had so many moments in recent months while out on transit where I feel the urge to lash out at people. I want to snap at the person sitting next to me to MOVE… or the person talking too loudly to STFU. I have no interest in violence, but

Since last year, I now ask male friends and other men I come across, to ask for permission to hug me. Even women, although I’m better with them. No surprise that the ex in question is male.

I don’t know how to deal with all of this. I figured after 24 years and tons of therapy, I’d be better, but I can’t help pulling away from people in the physical realm (as opposed to online) because of what I’m dealing with.


One of the hardest things about this is that I need work. Which means being on transit, being in an office setting around others, having to negotiate physical space while trying to sort out this anxiety and C-PTSD.

I had a job yesterday assembling some cabinets… was supposed to continue, but my back and other joints decided against it. There really is no amount of pain medication that can help. Trust me on this. I can do physical jobs here and there, but not hours on end. And my body still pays for even those small tasks.


I wish I knew how to fix this part of me. Still fighting an anxiety attack… but calming down a bit… the C-PTSD and related things severely affect all the other things in my life. I hate it.

I wish I had a magic wand to make it go away.

~A

Posted in chronic pain, disability, health, life, urgent

10/11: Tool Junkie

I admit, I’m a Tool Whore. I love me some time in a hardware store, baby. I’m more comfortable in a hardware store than a nice dress shop.

I’ve made it known in the past that I do stuff via a website/app for folks to hire people like me to come and do things like assemble furniture or clean (not one of my offerings, mind you). My hand tools come with me to every furniture gig. More and more, I find I also need to bring things like L brackets and such to fix goofs by either the client or -if they purchased it second hand- the hand-handed disassembly of the previous owner. I have bits and pieces from IKEA and hardware stores, ready to fix whatever may come up.

The problem is that that shit gets HEAVY. One thing I’ve also mentioned is that I have a multitude of injuries from over the years. My back being the worst (other than the cluster headaches, but those are less common). I walk with a cane while out and about because I know something will start hurting. It just does. So, carrying a heavy tool box is getting harder and harder. Sometimes, if I know exactly what to bring and don’t need the supplies, I can keep it light. The strain on my back has become more and more noticeable and painful. To the point where today, I had to switch my cane to my left hand for a while because the pain in my right low back was so excruciating. I then switched back a couple blocks later because then my left hip/low back was griping at me.

Despite my injuries, I enjoy the task of furniture assembly. I’m GOOD at it. I get a lot of really great reviews from clients. I can’t do it all day every day… but I love doing it, regardless.

So, I’m eyeing wheeled tool boxes. I’ve picked one potential out on Amazon. I put it on my wishlist, but it’s more than I really can/want to spend ($55). At first, I was thinking one of those collapsible crate thingies on wheels… but then I’d still need closed things that can fit in it and I’m not sure my tool box will fit… and I KNOW the container with the hardware from IKEA won’t.

Just a handy little tip for my fellow IKEA lovers: Go to the as-is section and look for the little round spinny rack. There are taped up bags of loose hardware and things like dowels for $5 a bag. Get a couple of those and you’ll spare people like me the mess of trying to find parts to help you fix things.

I’ve also added their cheaper single piece rolling caddy… I like the separated elements of the pricier one… but either would do… at least for now.

Do I collect other things? Hmm, do penguins, fabric, sewing supplies, crafting supplies, and art supplies count? Yeah… silly question…

~A

Posted in anxiety, artsy stuff, chronic pain, creativity, depression, disability, health, job hunting, life, Personal

10/10: Blargh

So, I know I’ve been fairly quiet. There are multiple reasons for it, and some I can’t/won’t discuss publicly. Seattle and GeekGirlCon wiped me out emotionally and physically. My back is still swearing at me for doing too much. Other stressors haven’t helped. I swore I’d catch up on school and I’ve fallen behind on catching up… which isn’t good.

My energy levels tanked since Seattle and I have a day or part of a day here and there where I have some energy, but then it vanishes about as fast as it appeared. I drink coffee and such even though I’m technically not supposed to have caffeine (issues with borderline hyperthyroid when I have too much, so I can’t drink much of it… and it doesn’t have as much of the effect on my as it does with most people).

The things I need to work on (in no particular order):

  • School
  • Job hunting
  • trip to Wallyworld for some items much needed for ASAP things
  • art stuff (commission and Inktober, which is more for fun, but a nice way to get me drawing more)
  • cleaning
  • and many other things…..

So many things to do and not nearly enough energy to do them. I have a Task today in a bit, and almost had another for later this week, but that fell through. I need all the income I can get, so that one was kind of important. Oh well.

I’m still here… still kicking… just facing a lot of stuff and not enough energy to tackle it all.

~A

Posted in bugaboos, chronic pain, depression, disability, faith, health, individuality, life, Personal, politics

10/4: Stubborn Independence

I have -always- been this stubborn, pain in the ass, fiercely independent person. Even when I was painfully shy growing up, I preferred to be on my own and do things myself. I was raised that way.

My financial independence hasn’t come so easily, even at this point in my life…. fuck, ESPECIALLY at this point in my life.

But this past weekend, in Seattle, I realized one thing: I can’t be so damn stubborn all the time. I need to let go of a bit of my independence and let people help. Taking a cab to and from the Amtrak Station, getting my rolling duffel up to the 3rd floor w/o an elevator at the hostel I was in. Getting from Union Station here in PDX back to where I’m staying.

And last of all, help going between the train and the station.

I’ve never kept it a secret that I have disabilities. I’ve just never let them rule my life. I still don’t want them to rule my life. But I have to accept that I cannot always do everything.

I injured my low back at 17. While the discs themselves healed over the next few years, the sciatic pain has remained. Then, about 4 or 5 years ago, I re-injured the same damn discs. I’ve also broken my patella, one toe, knocked a few other things (such as my SI[Sacral-Iliac] joint) out of whack, more pinched nerves in places other than my spine, deal with Cluster Headaches, TMJ pain, and a few other things. And those are just the physical things. Also depression, anxiety, heart issues [tachycardia], etc…

And yet I want to push myself and see being 45 as my “half way point” in life… wanting to hit 90 still kicking ass. I’ve tried so hard to deny that I’m truly disabled… “oh, I JUST did this to my back/knee/ankle/shoulder… I’ll be fine”

I think my friends have heard that a few too many times from me. I downplay my disabilities. But I’m also currently curled up on my bed from spending the whole day here due to the headache, back pain, feet having issues, and just generally being really fucking exhausted.

I say yes to helping friends move things. I try to tackle the bins and boxes in storage on my own… because if I can’t do this alone, why should I have all this stuff? If I can’t manage it…?

Currently, I’m also emotionally drained from the overwhelming emotions coming from the massacre in Vegas. I have a little research to do, but there is a post forming about what can be done by echoing a certain other country I love dearly. And they are NOT a Bastion of Liberalism, yet they have very strict laws on the books about firearms and ammo. But more on that later. I’m also reading what friends and FoF’s post in the calmer discussions on FB.


As for those vile Cluster Headaches. Last week, I had two phone calls… same day. First was to schedule the oxygen tank for home therapy so I can manage it myself. Second was from the billing department from the same company. She didn’t realize the other person had already scheduled it, but we did a “wait and see” on whether my insurance would cover it. The scheduled delivery is “sometime” tomorrow, 10/5. I’ve heard nothing else from them on whether it’s been approved or has to be rescheduled, etc… so this should be interesting. I may call in the morning, if I’m coherent enough, and check with them.


Back to the whole Independence thing… I may blog more about it later. I know one thing though… When I’m out and about, riding on the buses or the MAX here in PDX, I see others with walkers or scooters. While I’m aware their situations may be different, I see similarities as well. I don’t want to go down that path. My cane, yes. Crutches when needed for immediate injuries, but when I say I wouldn’t mind a new set of wheels, I’m not referring to a walker or scooter.

I think that’s it for now…

~A